Anonymous Genomic Data and Samples

**Semantic type:** Intellectual Product

**Definition:** Anonymous data and samples are never labelled with personal identifiers and therefore there is no potential to trace back genomic data and samples to an individual subject. In some instances only limited clinical data is associated with anonymous samples. As anonymous samples and associated data are not traceable back to the subject, it is not possible to undertake actions such as sample withdrawal, or the return of individual results. The use of anonymous data and samples does not allow for clinical monitoring, subject follow-up, or the addition of new data.